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What Am I About?

 
I am just an ordinary guy that has discovered that he loves to write. I love people with special needs as I have a son that is very special. I also desire to be an advocate for children with rare and incurable diseases. Because I work full time in the aviation field, I keep most of my focus on a couple groups of diseases in particular. They are both known to be lysosomal storage disorders.
How did all of this come about? It was through a book about one of the most incredible Navy SEALs that got it all started for me. Following his legacy led me to a little girl from his home town of Hot Springs. She had a rare disease named Batten. I would eventually go meet her along with my family and I would also dive an underwater memorial dedicated to the Navy SEAL. This Batten Princess led me to follow other families that are facing the same circumstances. She is the one that taught me that I love to write. 
A"Lice Brionne (Angel Ali).
 I try to bring honor to the little warriors that deal with Batten, as well as their families. Added in are some of the families who have a child with MPS. Spreading awareness is my passion and purpose. So my goal is to use my love for writing to accomplish this task. There is absolutely no way that I can do enough. If I was rich, I would do so much more but this is what I have to offer. And so, I will keep it up for as long as I can and also for as long as I am allowed to. I so appreciate the kind words of encouragement that I have received from those inside the Batten and MPS communities. Thanks for taking the time to read the stories within.
​Your friend,

​~Greg~ 

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Seeing Adam's resting place.
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You are never forgotten Adam Brown!!
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She made me aware and changed my way of thinking.
​There truly is none like her!

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I'll always be Benjamin's daddy.
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  • Lysosomal Storage Disorders?