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Letter to Larry

2/25/2017

6 Comments

 
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If you have read my blog in the past you already know my story. In fact to some you know it Ad Nauseam (to a sickening or excessive degree). At one time I had titled a series of blog entries “My Incredible Story”. To some it all may not have seemed all that incredible but I felt that it was interesting how one simple occurrence led a series of events that would change my life in a meaningful way. The story went something like as follows:​

We were at a local mall visiting a Christian bookstore and I noticed a book that was on display that was called SEAL of God. It was written by a man named Chad Williams who became a Navy SEAL and then would leave the military to become an evangelist after serving overseas. It was a great book and I spent an entire weekend reading it. I couldn't put it down and when I was finished, it left me wanting more. We were at our local super store on a different day and I noticed a book called Lone Survivor by Marcus Luttrell. The book was absolutely gripping and I couldn't put that one down either. 

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On yet another day, we were at Benjamin's favorite mall and at his favorite bookstore. While there, I was looking in the military section for my next read and I saw a book titled FEARLESS. It was about a Navy SEAL as well so I flipped the book over to look at the back cover. This revealed that Adam Brown of Hot Springs Arkansas, who the book was written about, had some very serious problems. He would overcome them and would go on to become a SEAL only to be killed in action. I can't remember exactly what I was thinking at the time but it was something along the lines that his story ended in defeat. I wanted to read about a person returning from battle in victory.

I put the book back on the shelf and it is possible that I might never have picked FEARLESS back up ever again. Wow! I put it back and would end up buying Marcus Luttrell's second book which was call Service. It continued to tell Marcus' story and would turn out to be another great read. By this time, my reading was starting to be a habit and I thought that purchasing a Kindle was a good idea. I approached my my sweet wife about it (you know it is really women that rule the world) and she said that would be a good idea. After receiving my Kindle, I would go on to read books like The Outlaw Platoon by Sean Parnell. Another great read! I had read maybe one other book after that and I started thinking that it was time to consider reading FEARLESS. I downloaded it onto my Kindle and began my little journey. I was instantly glued to this book as I read what I consider to be one of the most incredible life stories ever told.

​The things that Adam overcame just to get into the SEALs was amazing enough. However, the injuries that he would overcome to not only stay in the military but also to make it into SEAL Team Six. They would be unbelievable if not true and they put Adam in a class all by himself. Another thing that connected me to the book was the details of the type of man that Adam was and also the type of family that he came from. I could go on forever but I would just like to make the point that this book stands out as being in a class by itself and it is very possible that I may have never read it. I have read it five times and I know that others have read it more times than that. My only thought after reading it for the first time was how do I get a hold of Adam's family to thank them!

PictureThe marker which would become the center piece of Fearless Rock.
So this is where it becomes even more incredible to me. It was through a series of Facebook pages that I would both learn about an underwater memorial created to honor Adam and also to learn about a princess named Ali. If you have been reading along, you already know many of the details. I have talked about diving the memorial and last week I talked about meeting Ali. Upon our return from our trip to Hot Springs, I was asked by the pastor of the church we attend to send him an email. In it he wanted me to detail what we had experienced on the trip. I ran across it the other day thanks to a friend named Sue! So I thought that it would be kind of neat to share it along with many of the pictures that I took on the trip. Wow, it has been almost three years now but the entire experience has had a big impact on my life.

So as some might find it unfair to make a person sit and watch their families home movies, you might find this equally unfair. I hope not though. 
I'll italicize the content of the email and change the font color while adding other details. Hopefully this will not make you nauseous. ​

Hi Larry!
​

Sorry it has taken me so long to get back to you. Ten hour work days do not leave me with a lot of spare time.
As I am sure you are aware, I am a huge fan of our military and especially those who serve in the special forces. I have now read several books about those who have sacrificed to serve in these latest conflicts. There are many amazing stories, but none greater than that of Adam Brown from Hot Springs, Arkansas. The person that he was and the things he overcame to serve at the very tip of the spear, is nothing short of incredible.

It was through Adam’s Facebook page R.I.P. Adam L. Brown (administered through his wife Kelley) that I learned about an underwater memorial called Fearless Rock that was being built by a gentleman named Will Stevens. The name of the FB page for the memorial is called: Fearless Rock – the Adam Brown Underwater Memorial.​

I have been as big of a supporter as I could be of the memorial long distance and became pretty good friends with Will, its founder. I even went as far as to use the dive patch of the memorial as inspiration for a tattoo that I had done on my right arm. Will Steven’s presented me with the first Navy flag that was flown at the memorial and I had it framed. It hangs on the wall in my bedroom and is a priceless possession.
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Us with Ali at Applebee's in Hot Springs. Photo taken by Donya.
So I got the idea to take diving lessons so that I could go see the memorial for myself, and to meet those that were involved with it. But there is a little more to the story.
​

Enter in Ali Vise of Ali’s Angels and her wonderful family. Ali, which is short for A”lice, was diagnosed with Infantile Batten Disease, at age 4. There is no cure for Batten Disease and it is always fatal. Doctors said that Ali would not make it past age 11. In fact she just passed away recently at age 7. Part of our going at the time we did was meeting Ali and her family before it was too late. I failed to mention that Ali and her mom were featured on the Fearless Rock FB page and that is how I became aware of her situation. I sent her mom a picture of our Benjamin and that is how we became friends. We have been financial donors to Ali’s cause in as big of a way as were able and have immersed ourselves in prayer for her and her family. As a result, our families have bonded. In fact Ali’s mom and grandmother are talking about coming to visit sometime. I would consider this a great privilege. You see the Ali’s Angels FB page has received 134 thousand ‘Likes’. Regardless of that, we have grown to love this family.
Anyway, I am including in this e-mail a photo album and a written tribute for Ali that I posted on Facebook. Please take a look. Seeing this much photographed little princess and her family in person was an incredible privilege.
​
The trip lasted 4 days. We flew there on Thursday and returned the following Monday. It was a whirlwind trip. Friday we were able to meet Ali, her mother Donya, and, and Grandmother Doris (or as she is referred to lovingly, Nini Cat. Their last name is Catlett) for lunch at Applebee’s. This was a real treat for sure!
Saturday was dive day. Will Steven’s picked me up at the motel with all my dive gear in hand. He first took me to Adam’s high school, Lake Hamilton. We got onto the football field where Adam played. This was so cool! 
Then we went to Adam’s grave site. There is a very interesting story about his head stone in the book. Being able to see this was so special to me, a very emotional time. Next it was off to dive the memorial. I had a great time of conversation with Will and he also presented me with a Fearless Rock Dive Team survival strap. I wear it proudly!
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Diving the memorial was so spectacular. I had seen countless pictures of it but there is nothing like being there. The effect of the magnification by the water is something that is not easily captured on film. To see it in person and actually lay my hands on it was an experience I will never forget.
After diving, we went to lunch at Stubby’s BBQ in Hot Springs. This place is mentioned in the book. Adam worked there when he was down and out. It is also the only place where Will Stevens crossed paths with Adam Brown. Another neat story that we don’t have time for. I had lunch with Brick and Jennifer Smith, two big time members of the dive team. ​

Let me interrupt the content of the email to mention how sad that I am to know of the passing of Brick Smith. You see Brick left us due to a Sky Diving accident just prior to this blog entry. Brick was an outstanding individual that gave himself to others on a daily basis. He was a nurse by profession and was also a type I diabetic. I am type II. Brick worked, as a professional, with other diabetics in teaching them how to cope with the disease. He was well respected by many. Brick was an experienced scuba diver who had logged well in excess of 500 dives. Brick became a fitness buff and spurred on his fellow Gym Rats to excel in that area as well. He was a member of the Fearless Rock dive team and was a founding member. He helped Will Stevens build and maintain the memorial. Brick was an all around great guy and a very good and active father to his daughter Saxon. Although he had split with his wife Jennifer since the time we met, I know that Jennifer has to be devastated by the news of his passing. He most certainly is greatly missed by his daughter and Will Stevens, as well as, the other members of the dive team. Brick lived life to the Max and went out doing something he really enjoyed. Until we meet again sir, it was nice to spend time with you!
We also met up with Rose Anne Davis who is a really neat lady who I met on Facebook as well. We attended church with Rose Anne on Sunday and also went to dinner with her on Saturday night. So Saturday was very full. Sunday after church, we went to lunch with Rose Anne and one of her friends.

Then we were off to spend more time with Donya and "Nini Cat" Catlett. We spent time walking around the old downtown area of Hot Springs and went over some of the history.
So it was a packed weekend. One I will never forget. I’ll be going back, hopefully this March. They have a 5K run/walk in honor of Adam every year at that time. Lord willing, I’ll be there. This whole thing has been an incredible, life changing occurrence for me.
As I have said in prior blog entries, I feel that it was through this entire experience that I had gotten off the couch and stepped outside the box of life.
The steady drip, drip, drip of normal domestic life was all of a sudden interrupted without me realizing it. It is always interesting how one event can lead to another and that certainly has been the case for me.

I have the very utmost respect for the men and women who have put on a uniform in defense of our country. I especially love reading the stories of those who serve in the special operations community. The amount of skill and training coupled with the danger and sacrifice is unparalleled by any standard. I can't get enough.

Most of my time on active duty was spent in the southern United States and I grew to love the culture down there. I love to go there every chance that I get. To be in Adam's hometown, seeing the sights and experience everything that was brought out in FEARLESS was well worth the trip. I will never forget that extended weekend.

When it comes to scuba diving, it is something that I had never considered doing. The whole thing seemed to be kind of creepy to me and then there are the SHARKS! But I did it and never would have if not for Adam, Will, and Fearless Rock.
​

And then there are the kids. My heart! I have grown to love the children, and their families, who cope with rare and incurable diseases. My desire is that much of my blogging in the future will talk about the trials that these people face in their lives. This all started with a little girl named Ali who would lead me to follow many others. My activities on social media and my blogging revolve, in large part, around spreading awareness, as well as, bringing honor and comfort to the families of these children. It all began with a Princess named A"Lice Brionne. I have met so many neat people.
That is why I thought that the entire thing and how it all came together was incredible and it all started with a trip to the mall.​

“I have an incredible story to tell. It’s not that I have done anything incredible or that I possess any attributes that one might consider to be incredible (I am really pretty regular). Rather, it is that I have had some life changing incredible things happen to me in the last couple of years. It is possible that it all may have never happened and it is interesting how it did. At least it is interesting to me.”
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None like her, although there are many others.
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Adam Brown - The Tender Warrior!
6 Comments
Will
2/25/2017 05:28:33 pm

Awesome job Greg! Thank you for honoring Brick!!!!! BE FEARLESS

Reply
Greg Lopez
2/25/2017 05:30:05 pm

you're very welcome Will. Thanks for your kind words!

Reply
Sandy
2/25/2017 08:07:32 pm

Another fantastic read. Thank you for sharing Greg,

Reply
Greg Lopez
2/25/2017 08:09:09 pm

Thanks so much Sandra!

Reply
Michelle Nelson( ladie blue)
2/26/2017 11:06:54 am

Love it absolutely amazing❤😘😍

Reply
Greg Lopez
2/26/2017 07:11:40 pm

Thank you Michelle ?❤?

Reply



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    Author

    Concerning kids who battle Batten disease -

    Is it them or is it us? Is it the feelings that they produce in us or is it that there is something truly special about them? I think that the answer has to be all of the above. It is them, but they also do something to us. Once you give a little piece of your heart to these kids and their families, they come close to taking all of it. Let it happen!
    ​
    Greg Lopez - Blogger and Advocate

    Picture

    Picture
    I would like to welcome to my blog Sanfilippo families, as well as, families in other MPS communities. I am grateful for every opportunity to write about those who battle an MPS disorder. This, of course, alongside their special children. This is a labor of love that is extended to each one of you! Scroll down to see MPS family titles.

    ​The
    ​ Spotlight - 


    Highlighting a previous blog that might interest you:
    Picture

    Forever Royal - The Final Version

    One child in a family with a rare disease is a challenge. What if there is two? Heartbreak multiplied you pick up the cause and do your very best to make a difference. That is how a normal family becomes Forever Royal ...
    ​

    https://www.rareblogger.com/blog/forever-royal-the-final-version

    Batten Family
    Titles -


    ​Take the titles listed below and go to month and year listed in the archives. 

    January 2017 - 

    *The Story Between The Lines
    ​February 2017 -
    *I Know Just Where You Are
    *My Kind Of Royalty
    March 2017 -
    ​*The Caring Type
    *Face to face: A Fairy-tale
    April 2017 -
    *No Ordinary Love
    ​*A Rare Friendship
    May 2017 -
    *Tyrell and The Rare Love Story
    June 2017 -
    *Seth and The Healing 
    July 2017 - 
    *Little John and The Reason 
    *Sands and The Scottish Princess 
    August 2017 - 
    *A Rare Kind of Devotion
    *The Giggle Box 
    September 2017 -
    *Austin Smiles
    *Sweet Montanna and The Status 
    October 2017 - 
    ​*The Blog About My Blog
    ​*Sebastian's Story
    November 2017 -
    *Lydia, I Love You!
    ​*Kayden And The Change In Plans
    December 2017 - 
    *Those That Are Like Them


    January 2018 -
    *Nora Skye - I Know Just Where You Are
    ​*Brock and The Priceless Memories
    February 2018-
    *Jamesy Boy and The Treatment

    March 2018-
    *The Priceless Princess From Beyond
    ​*Forever Royal - Part One
    April 2018-
    *Forever Royal - Part Two
    June 2018-
    *That Kind of Love - Conner's Story
    August 2018-
    *Lasting Impressions
    September 2018-
    *What I See (She is a Butterfly)
    ​October 2018-
    *No Longer Alone - Kristiina's Story
    November 2018-
    *Things We've Talked About - Oscar's Story
    ​*The Reason Why - Hannah's Story
    December 2018-
    *Kayla's Perfect Princess - Breanna's Story

    January 2019-
    *Where Do I Go From Here? - An information only blog
    February 2019-
    *Warriors Unaware - Mia and Kaleb
    April 2019-
    *Her Little Story
    May 2019-
    *Someone Like Raelynn
    *Forever Royal - The Final Version 
    August 2019-
    *Awfully Beautiful - The Life of Noah and Laine
    September 2019-
    ​*A Lifetime of Love - Tegen's Destiny
    December 2019-
    ​*Forever Beautiful - Gabi's Story

    January 2020-
    ​*The Miracle Baby - Amelia's Story
    March 2020-
    ​*Dylan's Life - A Small Town Story
    May 2020-
    ​*Princess Grace and the Challenges
    June 2020-
    ​*Anything for Tessa - Her Story
    September 2020-
    ​*Haley Bug's Battle - A Family Story
    November 2020-
    ​*Journey Unexpected - The Rich Family
    Sanfilippo Syndrome and other MPS family titles -

    July 2020-
    ​*The Beautiful Light of Haidyn Grace
    August 2020-
    ​*Any Distance Traveled - Reagan's Story
    ​September
     2020-
    ​*The Missing Someone - Kiernan's Story

    Archives - Use title listed above with the applicable month and year.

    January 2021
    November 2020
    September 2020
    August 2020
    July 2020
    June 2020
    May 2020
    March 2020
    January 2020
    December 2019
    September 2019
    August 2019
    May 2019
    April 2019
    February 2019
    January 2019
    December 2018
    November 2018
    October 2018
    September 2018
    August 2018
    June 2018
    April 2018
    March 2018
    February 2018
    January 2018
    December 2017
    November 2017
    October 2017
    September 2017
    August 2017
    July 2017
    June 2017
    May 2017
    April 2017
    March 2017
    February 2017
    January 2017
    July 2016
    June 2016
    May 2016
    April 2016
    March 2016




    Highlights from the beginning of gregster60.com - 

    Benjamin's Daddy - March and June of 2016  - Revised May 2017. Titled Benjamin's Daddy Revised.

    My Fearless Adventure - April and May of 2016

    A Different Type of Warrior - January 2017

    Letter to
    ​Larry -
     February
     2017


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